Finish Lines

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One of the many things in life I don’t understand is why so many people enjoy watching gymnastics and figure skating.

Granted, the athletes are graceful and powerful. Their bodies perform in ways I can’t imagine mine ever doing. What I can’t fathom is the scoring. To give one participant a “9.2” and another a “9.1” makes no sense to me. I want the team that scores the most points to win, the person who crosses the finish line first to be the victor.

I need finish lines in my life. I don’t have to finish ahead of you; I don’t even necessarily need to finish (although not finishing what I start does piss the hell out of me), but I do need a destination, a goal toward which to go.

One reason I like thinking of myself as a pilgrim is that all pilgrimages have destinations: a holy site, a family homestead, a place that calls you for some reason. I admit the journey is usually more important than the destination, but without the destination, there is no journey. At least not for me. “Not all who wander are lost,” wrote J.R.R. Tolkien, but some like me who wander usually are. Even when I go for a walk in the woods behind my house, I have a destination in mind—Okay, today I’ll do the Blueberry Loop across Pleasant Hill Road—and while it’s okay to change my mind—Nah, I think I’ll do the Ravine Trail instead—I’m just swapping one destination for another. Anytime I’ve just wandered I’ve either gotten lost or come home with ticks.

When I taught, my destination was the class room, and every lesson plan had a finish line. Now in retirement, I still need a daily destination. Four days a week, I plan to be at my writing desk in the morning. Wednesday it’s Men’s Group and Al-Anon. Sunday, I go to Church. Another day I head out for the farmers’ market or the hardware store or the woods or the site of this week’s jam. One of the beauties of retirement is that I can change that destination—even go nowhere—any time I want, and I often do. But the point is that I have a target to help give direction to my days.

I can hear some of you groaning, “My God, what a regimented existence. I could never live that way.” Well, the two times in my life I haven’t had any goals—in college before finding the world of writing and literature, and after my daughter Laurie died—I’ve been confused and depressed to the point of being nonfunctional.

It was after Laurie’s death that I learned about the word “disoriented,” as it pertains to the loss of a child. The word “orient” comes from the French s’orienter which literally means to face the east (or orient), and which came to mean “to take one’s bearings.” Western churches were built with their altars facing east towards Jerusalem, signifying that Christians orient themselves—their beliefs, their conduct—around the Bible and the teachings of Jesus. Today, we use the word to refer to whatever customs, moral standard, or value system we use to guide us in our day to day activities. We are oriented by a world view, a particular lens through which we see things. When a child dies, that lens is shattered. Everything we believe, all our assumptions, lie in rubble. We have no point of orientation. We can lose our perception of time, place, and identity. I’ve read it takes on an average of two to four years (in my case it was three) for parents to begin to reorient themselves, find a new point of reference.

Which is why, I think, most grieving parents need a project after a child dies. Whether it’s building some kind of memorial, establishing a foundation in our child’s memory, writing a book, planting a tree, or getting a tattoo, we need a destination, a finish line, something toward which to journey.

As I’ve written many times in these blogs, after Laurie died, I became drawn to contemplation and meditation, to Buddhism and the Christian mystics. For many years, I struggled because there seemed to be no goal, no finish line. Indeed, much of what’s on the market these days on contemplation and meditation stresses the need not to have a goal. Simple “awareness,” you will read, is what you should practice.

But it wasn’t until I started focusing on my higher power, the God of My Not Understanding, as a sort of final destination that I was able to feel grounded, then healed. Now, for twenty minutes once or twice a day, I sit in what I call contemplation, but think of as an interior pilgrimage toward the Great Mystery. I never reach my goal, sometimes feel as if I don’t even take a step, but I need that destination, that finish line.

The genius of programs such as Alcoholics Anonymous and Al-Anon is that they clearly lay out a spiritual journey toward a destination—twelve steps toward what’s often called serenity. And one of the first things you learn is that the steps are in order. You need to start with step one—“We admitted we were powerless over alcohol, and that our lives had become unmanageable”—before you can go to the next step and the step after that until you get to number Twelve—“Having had a spiritual awakening as the result of these steps, we tried to carry this message to others, and to practice these principles in all our affairs.”

Working the steps, then, is looking toward a kind of finish line. Crossing this finish line doesn’t mean you’re finished. Long-time members tell me that you just start over again at a different level, sort of like finishing the first heat of the Olympic trials and moving on to the next heat, until eventually, you get to the Main Event.

At my age, the Main Event—what poet A.E. Housman called “the road all runners come”—is fast approaching. Will that be the final finish line? I can’t believe it is, maybe because I just can’t imagine my life—or death—without another finish line to head towards. Life, I read, is always evolving; the universe is always expanding. Why not death?

Or maybe I’m wrong and in death I will finally just be.

Then, perhaps I’ll understand gymnastics.

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I’m giving my granddaughter a “10.”

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Roots

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“A tree stands strong not by its fruits or branches, but by the depth of its roots.”

— Anthony Liccione.

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Trees have always called to me, from the white pine tree I used to climb behind my house as a kid, to the stately Douglas Fir and Ponderosa pine I fought forest fires to save when I was in college, to the four-trunked maple tree in the back yard of my home for over twenty-years, to the mighty redwoods I visited a few years ago. Lately, though, I’ve been thinking more about the roots of trees than their trunks or branches, perhaps because I’ve been thinking a lot about my own roots.

In doing some reading about trees, I find that their roots can branch out seven times the height of the tree. When these roots interweave with other roots, they create a single organism. “You can think of a [tree] trunk as really fingertips on a buried hand,” writes ecosystem ecologist Dylan Fisher. The 106 acres of quaking aspen in Fishlake National Forest in Utah are all connected by one 80,000-year-old root system known as Pando, or The Trembling Giant. The trunks, branches, and leaves connected to this system weigh in at 6,600 tons, making this the heaviest known organism on earth.

In thinking of my own roots, I find they also spread out as least seven times beyond the family trunk. My trip to Canada last fall introduced me to an interconnected web of Wiles I never knew existed, stretching throughout southcentral Nova Scotia. My sister spent last year engaged in a genealogical pilgrimage, and has traced the names of our immediate family—Wile, Cleaves, Bennett, and Conrey—back to Reeds, Pooles, Hitchcocks, and Crocketts,  back further to  Whitneys, Davises, Rosses, and Hamiltons, and before that to Giles Corey, the only accused witch in Salem Massachusetts to have been pressed to death instead of hung (his last words were supposedly, “More weight!”), and Priscilla and John Alden (“Speak for yourself, John Alden”). Branching further back to England, my roots include Franklins, Densytes, and Mullins; and in Germany, the Weils, one of whom— Johann Frederich—emigrated to Nova Scotia.

Trees survive through their roots. Fungi infiltrate roots, not to attack but to partner with them, sharing nutrients across threads of what are called fungal hyphae that form what’s known as a mycelium web—a kind of underground internet, linking roots of different plants, helping one another with not only food, but information.  Jennifer Frazier, writing in Scientific American, describes how plants being eaten by herbivores release chemicals that are sensed by neighboring plants, who then increase their defenses. Paper birch send carbon to Douglas-fir seedlings, especially when they are shaded in summer, probably enhancing their survival. In spring and fall, the Douglas-fir return the favor when the birch have no leaves.

And what’s my mycelium web? What nourishes me, gives me information, helps me survive? I have survived as long as I have because of my second wife, Mary Lee, who has been a beacon of love during the darkest days of my life and who continues to nourish me with laughter, eros, food, and friendship. Her children, her grandchildren, her friends, her sister and her sister’s children all grace me with their affection.

My oldest community is made up of the friends I grew up with, many of whom I still get together with regularly, either in person or electronically. Through them, I’m fed not only through stories that no one else but us know (and we’d just as soon keep it that way), but also by the sharing of our pilgrimages through life—our ups, our downs that both sadden and gladden my heart.

There are the teachers I’ve taught with who continue to inspire me with their wisdom, the writers in my various writing groups who educate and challenge me to, as Herman Melville put it, “dive deeper,” the musicians I jam with who bring song and rhythm to my life, the folks I take Communion to in nursing homes who sustain me with their inner strength and perseverance. The writers I’ve read, the records, tapes, and CDs I’ve listened to, the chocolate I’ve eaten. There are the pilgrims I’ve met as I’ve journeyed to my roots, whether they be family homesteads in New England and Nova Scotia or the roots of my faith in Jerusalem, Ephesus, Iona, and Lindisfarne.

More and more as I age, I find my roots sustained by the unseen and the silent. “Everything you see has its roots in the unseen world,” wrote the Persian poet, Rumi. The Jewish Kabbalah’s mystical Tree of Life is pictured with its roots in heaven and its branches and leaves reaching down toward us. Many of the communities that nurture me are connected with this unseen world: my church, the Episcopal monastic order to which I’m an associate, the interfaith organization of contemplatives I belong to, the men’s group I attend Wednesday morning and the Al-Anon groups I attend.

During a recent Quiet Day at my church, I realized that one reason I’ve become concerned with roots is because mine have stopped growing. My only child died of cancer. My brother is gay. My sister’s only son and his wife cannot have children. Thus, my family name ends with my brother and me, and my family tree ends with my nephew and his wife. I found myself drawing the follow picture:

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But even dying trees can support not only their own species but other species as well. For example, according to Jennifer Frazier, when Douglas-fir begin to die, their roots, through fungi, send food to young ponderosa pine battling to survive.  I’d like to think that I might also nourish others who are struggling, through the stories, laughter, love of silence, perseverance, and music that have fed me through the years.

Probably one of the purposes of these blogs, come to think of it.

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And if you liked this blog, you might also be interested in reading:

“Call to the Redwoods”: https://geriatricpilgrim.com/2016/08/22/call-to-the-redwoods/

“Rooting Around”: https://geriatricpilgrim.com/2017/10/02/rooting-around/

 

 

 

 

 

 

Making Assumptions

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When you assume, you make an ass out of u and me.”

—Oscar Wilde

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Mary Lee and I are planning a trip to Africa. We’re reading up on where we think we might like to go and watching YouTubes made by people who’ve taken trips there. I’ve just finished Paul Theroux’s Dark Star Safari: Overland from Cairo to Cape Town. We’re getting shots for typhoid and hepatitis, and reading up on the kind of pills we need for malaria and what bug sprays to take along.

Planning, writers on pilgrimage agree, is essential to the pilgrimage experience.

What I need to be careful about is that I don’t confuse making plans with making assumptions. I’m better at separating the two—one of the benefits of aging (they do exist)—but I still fall prey to the anxieties, delusions, and disappointments that occur when I make assumptions about what’s going to happen, whether on a pilgrimage, retreat, or quick trip to the grocery store.

Several years ago, as Mary Lee and I planned our pilgrimage to Jerusalem, I assumed the old city would look like all the photographs and paintings I’d seen of glorious holy sites and people kneeling quietly in prayer. Israel, I assumed, would look like the 23rd Psalm: green pastures and still waters. I assumed I would be filled with awe and reverence. I did not assume how steep the streets are, how relentlessly hot the weather can be, and how the crowds could at times be suffocating; nor that I would become sick with dysentery, and that most of the holy sites were swarming with packs of children hounding us for money. Only later—when I returned home, really—did I recognize how important a pilgrimage I’d made. But my assumptions, I think, ruined much of my actual time there.

None of the YouTubes—and I saw a lot of them—on hiking St. Cuthbert’s Way from Melrose, Scotland to the Island of Lindesfarne off the coast of England prepared us for the hills and the cow shit. (See above photo.) None of the brochures on San Francisco prepared us for the mosquitos that attacked us one night in our hotel. On the other hand, when Mary Lee and I traveled to Iona off the west coast of Scotland, we assumed that a couple of days would be more than enough to cover an island just four miles long and a mile wide. The next year, we spent a week there and still didn’t feel as if we’d stayed long enough.

I’ve made similar faulty assumptions before going on a retreat. Once, I assumed I’d spend my time snowshoeing in the woods and spent it in bed with excruciating back pains. Another time, I thought I would enter a period of silence and slow time and wound up spending several days in tears, banging my head in rage against the side of my bed.

These previous pilgrimages and retreats have helped me learn to put aside preconceived notions about what may or may not happen and accept that what will be is what will be—a lesson I’m trying to carry over into my day-to-day pilgrimage through life. If I’m going to have lunch with some of my old classmates, I try not to assume I’ll wind up arguing over politics and spend that morning getting ready to do battle, because if the subject of whoever’s President never comes up, (which it often doesn’t) I’ve wasted the morning. If I’m going to be spending time with my one, two, and five-year-old grandchildren, I’ve learned that to assume they’re going to arrive at the house wanting me to fix them oatmeal and read books and go to a playground is only going to make both them and me miserable.

It’s taken thirty years, but I’ve learned never to assume how I will be each year from November to Christmas—the two months I spent at my daughter’s bedside when she was dying of cancer. Some years, I’m overly angry or forgetful or sad or sick. Last year, I realized that I wasn’t any of those things; that, in fact, I was cheerful and looking forward to Christmas—until the anniversary of Laurie’s death, when I suddenly spasmed into tears.

Assumptions illustrate how, as the Buddhists say, “We do not see things as they are; we see things as we are.” The year after Laurie died, besides being angry, I was confused and afraid. But what I wrote in my journal that year were rants about news articles in which I disdained everyone else for being confused and afraid: book sellers for pulling Salman Rushdie’s The Satanic Verses off their shelves because of fear of Muslim reprisals; people for taking anti-depressants because they were afraid of not feeling happy all the time. These days, I find myself fighting the assumption that because I’m not as strong as I was fifty years ago, neither is my country; that because I’m going to die within the next twenty or so years, the United States will as well.

I find it interesting that when we talk about assumptions, we do not have them, we make them. Assumptions, then, are what we create, we fabricate. There’s also the implication that what we create is false, as when we assume a role in a play or assume a pseudonym. We make these assumptions, I think—okay, I make assumptions, I think—in order to bolster the ego, convince myself that I have control over the future, hide my anxieties about the unknown.

The problem is that these assumptions keep my mind closed to possibility, to mystery. Last week, I ran across a quote by Albert Einstein:

The most beautiful thing we can experience is the mysterious. It is the fundamental emotion that stands at the cradle of all true art and science. He to whom this emotion is a stranger, who can no long wonder and stand rapt in awe, is as good as dead, a snuffed out candle.

One thing I do now to try to avoid making assumptions is to end each day asking, “What surprised me today?” Not all of these surprises are, of course, pleasant ones—yesterday I was surprised to find caterpillar nests in the beautiful apple blossoms on the tree at the end of our street—but the practice has opened me up a little more to some of life’s mysteries. And at my age, I want to be open and standing in awe as long as I can. My candle’s going to go out pretty soon anyway; I don’t want to snuff it ahead of time.

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Dancing Lessons

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Christmas Prom 1960

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Just before hitting the “Publish” button for my last blog on the importance of music in my life, I heard this voice in my right ear, “Of course, your next blog is going to be about dancing.” Music and dancing are intertwined, sort of like going on retreat and making a pilgrimage. My feelings about dancing, however, are more complicated than they are about music. I have always loved music; I have not always loved dancing.

I want to blame Arthur Murray, who, it has been said, taught America to dance. In the 1950s, when I first discovered rock ‘n roll and girls, there were over 3000 Arthur Murray dance studios in the United States, one of which sent instructors (I remember him as 30-ish, with thinning hair, wearing a wrinkled tuxedo, and her as blond—bleached?—in a black strapless dress that showed off her legs and the run in her stocking) to Yarmouth, Maine to line us boys up on one side of the room and the girls on the other, leaving a no-man’s land between the sexes that I spent years trying to cross.

Apparently, Murray, whose given name was Moses Teichman, felt that dancing was how people could become more sophisticated and move, as he had, into a “better” class of society. So, along with the steps to the waltz, the foxtrot, the jitterbug, or the cha-cha, the instructors also taught etiquette. Young men, for example, were instructed to walk across the floor to the young ladies, bow, and say, “May I have this dance?”

I have to say, however, that if the aim at the Masonic Grange Hall was to teach refined behavior to seventh and eighth graders, it was not a good idea after having taught us the steps to blow a goddamned whistle. The scene turned to something resembling the kickoff of a football game, as barely-pubertal males raced across the floor, elbowing each other in an effort to get to the four or five girls with breasts, the fastest and dirtiest fighters skidding to a stop in front of them, yelling “My’vethisdance!” while the chosen ones stood giggling and the rest of the girls stared at the floor, waiting for the losers to get to them.

My first experiences with dancing, then, taught me to divide the world into us and them: boys and girls, fast and slow, winners and losers, all engaged in a fight for survival of the fittest. (Which was underlined the evening my partner and I won a dance contest. I can’t remember how we won, but it certainly wasn’t because of my dancing ability. I think she and I must have been standing in the spotlight when the music was stopped or something. Anyway, my prize was a switchblade knife, once the weapon of choice used by street gangs.)

When I reached high school, the record hops in the gymnasium at first perpetuated my sense that dancing was a battle, first with myself to get up the nerve to cross the no-man’s land between the guys standing along one wall and girls standing along the other, and then with her to find something to say or how close to get or where to put my hands.

Until one night, dancing suddenly became unlike anything I’d ever experienced: losing myself in another’s embrace, looking into the eyes of someone and seeing both her and myself for the first time, forgetting my adolescent self-consciousness in our interaction with each other and with the music. (I think the song was “Dream” by the Everly Brothers.)

Fast-forward twenty-five years. I’m in Princeton, New Jersey, evaluating high school essays for the College Board. The last night of the reading, a bunch of us teachers are in a bar, bouncing our middle-aged bones around the dance floor to a collection of golden oldies played by some kids in ripped tee-shirts.  When the band switches from “Whole Lotta Shakin’ Going On,” to “I Can’t Help Falling in Love with You,” the woman I’ve been twisting with says, “Do you dance slow?”

Thirty-four years later, we still try to get in at least one slow dance a week.

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I wonder if the reason I feel called to write about dancing is to make me more aware of how the secular and the spiritual intertwine, and to reveal how my relationship with the God of my Not Understanding has changed and where it might be going.

When my eighteen-year-old daughter Laurie died of cancer, I thought my belief in God had died with her. But after a year of raging at my family, friends, students, the driver in the next car, and Boston sports teams, I realized, no, I’m really pissed off at God, which means I think God exists. Focusing my anger at God became the first step in what I think of as my pilgrimage through grief and grace. And almost thirty years after Laurie’s death, I still often feel like Jacob in the Old Testament, wrestling with, if not God, then with God’s angel.

On my desk, I have a copy of a Rilke poem, The Man Watching, in which the speaker praises those “wrestlers of the Old Testament,” who, “…beaten by this Angel/…went away proud and strengthened/and great…” Winning, Rilke writes, is not important to such a fighter, because

This is how he grows: by being defeated, decisively,

 By constantly greater beings.”

And yet during the last few years, as I’ve become more and more aware of having received the grace not only to survive Laurie’s death, but also to have lived, all in all, a happy life surrounded by love, I’ve started wondering if I’ve really been wrestling with God, or whether I’ve been engaged in a sort of dance, where all along, God has been trying to embrace me, take me into loving arms. And if it hasn’t been during those times when I have surrendered—let God lead, if you will—that I’ve received the grace to sustain me.

Both scientists and modern writers on spirituality tell us that everything in the universe —animals, vegetables, minerals, living and dead—is interconnected. Everything exists in relationship. The question for me these days (and I wonder if it isn’t a question this country is struggling to answer), is whether this relationship is going to be in the form of a wrestling match or a dance—whether when I look out my window at tree branches in the wind, I see the trees struggling against the elements or dancing to them; whether when I see someone of another color or another life-style coming toward me on the street, I see an opponent or a partner; whether I still see the world as us and them lined up on opposite sides of the floor, or whether I see just us, moving in harmony to the music.

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Prayer flags and daffodils, dancing—I like to think—in the wind.

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Scars

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For fifty years, I’ve been facilitating writing groups of various kinds. Participants have ranged in age from fourteen to eighty. They’ve been students, white-collar professionals, blue-collar workers, unemployed, and homeless. Over that time, I’ve begged, borrowed, or stolen certain writing prompts that always seem to work, no matter who’s there. For example, when a group meets for the first time, and I want to avoid the standard introductions and at the same time establish an atmosphere of trust, I’ll have us (since I always write, too) write about our scars.

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Almost everyone begins by at least mentioning physical scars. Men, especially, seem proud of them. The other night, I was watching a Netflix series called Longmire, in which Sheriff Longmire has been stabbed and his female deputy Vic is helping him bandage the wound.

“You’ve got a lot of scars,” Vic says. “How many do you have?’

“Oh, I don’t know.”

“Come on. All men know how many scars they have.”

Silence. Then, “Twelve…thirteen now.”

Perhaps it’s a sign of the times that women are becoming less reticent about their physical scars. Last October’s Cosmopolitan magazine ran a series of photographs of women proudly showing their mastectomy scars. Photographer Ami Barwell said in the press release, “These photographs show that, despite what they’ve been through, these women are empowered. They are strong, happy, and sexy.”

Scars are part of growing up, and in many cultures children are intentionally scarred when they reach puberty as part of sacred rituals to celebrate their becoming adults. Richard Rohr, whom I often reference in my blogs, wonders if the popularity of tattoos and body piercings these days isn’t a secular substitute for what young men and women once gained through circumcision, scarification, shaving of heads, and knocking out of teeth.

Our scars tell a story of our lives. My most unusual scar is the one on the inside of my right elbow that looks like a burn. I like to show it to people to see if they can guess what caused it. Most can’t, because the scar tells not only of my past but also of an era long ago and far away. When I was four years old, I was in the cellar with my mother one day while she was doing the weekly laundry in our wringer washing machine. Fascinated by the rotation of the rollers, I stuck my hand up to touch them. The next thing I knew, I was screaming as the wringers went round and round on my arm— the first of what we in my twelve-step program call our “goddamned learning experiences.”

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As I moved into something resembling adulthood, I scarred the back of my head when I fell down some school steps onto a broken bottle. I garnered several knife scars from working in a market garden cutting lettuce, spinach, and beet greens, and a black scar when my friend Jerry and I were sword fighting with pencils in a high school chemistry class. (The lead is still in my hand.) Recent X-rays of my scarred lungs remind me of the years in college I worked fighting forest fires, inhaling wood smoke for hours until I could take a break, get away from the smoke, and light up a cigarette.

As an adult, I have a two-inch scar on my back from a fusion of L-2 and L-3 vertebrae, which kept me out of Viet Nam. I have two hernia scars (I’ll spare you a photograph), and two longer scars from bi-lateral hip replacement that I’ve always thought of as resulting from the time after my daughter died, when, like Jacob, in the Old Testament, I wrestled with angels.

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But if we’re proud of our physical scars, we tend, I think, to hide our emotional ones. I’ve spent seventy years hiding the scars of shame, rejection, and fears of confrontation and failure caused by growing up in an alcoholic family. And the death of my eighteen-year-old daughter Laurie has left a scar that feels more like an amputation, one that, even after thirty years, gets ripped open every time I visit someone in the hospital or read in the newspaper about the death of a young person. (That scar has been ripped open a lot lately.)

For some reason, our physical scars, which almost always are signs that we’ve failed at something, make us proud, while our emotional scars, which often aren’t the result of anything we’ve done, but have had done to us, make us ashamed. Maybe it’s because our physical scars say: “I can take it. I’m not a victim. I’ve survived,” while our emotional scars say, “I should be stronger, more in control.” When Laurie died, I felt weak and powerless. I did not go to her funeral. I refused to run her obituary in the local newspaper. I had recurring dreams about old high school basketball teammates making fun of me for being uncoordinated and slow. In other words, I was ashamed of myself, not because of anything specific that I’d done or not done, but because of who I thought I was: a loser.

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As I reach the seventy-sixth year of my earthly pilgrimage, one of my goals is to become as proud of my emotional scars as I am of my physical ones. This Easter has helped. As a practicing Christian, I believe in resurrection. But this year, I realized that even the risen Christ carried the scars of his death. In fact, in one of the most famous of these stories, his disciple Thomas will not believe that Jesus is risen until, as Thomas says, “I see the mark of the nails in his hand, and put my finger in the mark of nails and my hand in his side…” Only when Thomas is able to do so does he cry, “My Lord and my God!”

It’s Jesus’s scars that show his disciples who he is; I need to realize it’s my scars—physical and emotional—that reveal not only who I am, but also the ways in which I’ve become resurrected.

Or, as Bill, living in the local homeless shelter after losing his construction career because he’d broken his back and become addicted to pain killers, but who, nonetheless, was trying to put his life back together by taking on on-line course in computers, wrote for one of my writing groups,

“Scars are the ledger of life. The reminders of when we lacked experience. Wounds are due to ignorance and inattention, apathy, and sometimes poor coincidence. Some we hide from others, some from ourselves. Some are shared with only a few. Some we display proudly. You would think scars are grievous things. In truth they are wondrous. Scars are badges of life’s ills and trepidations…healed.”

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Bedside Pilgrimage

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High School Graduation 1988. I can see the cyst on the back of my daughter’s head.

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For the last few months, up until his death from cancer, I regularly sat in a nursing and rehab center by the bed of an old friend. The long corridors, the smell of disinfectant, the sounds of TV sets, the charts on the walls of Scott’s room, the nurses with their clipboards, brought back memories of when my daughter Laurie was in the Eastern Maine Medical Center in Bangor, Maine, and what I would now call my six-week pilgrimage through strange, often surrealistic landscapes.

A little background: From the time she was twelve years old, my daughter had a cyst on the back of her head. Her pediatrician said it was probably harmless, but that if it got larger, she could have it removed. During her senior year in high school, the cyst doubled in size, so during February vacation, Laurie went for surgery. In March of 1988, a routine biopsy determined the cyst to be malignant.

Suddenly, my daughter, her mother, and I were picking up the pieces of our lives and trying to put them back together. The diagnosis forced Laurie to withdraw from an American Field Service program to spend a year abroad, but that summer, when the tumor disappeared after radiation and chemotherapy, she applied to The Portland School of Art, planning to continue her treatments while taking one or two classes. Then, less than a week before school started in September, her leg collapsed while she was walking along a beach. She began physical therapy and made plans to reapply to art school in January. Confined to a walker at home, she found a job painting murals and designing menus for a new restaurant in town. When physical therapy did nothing but cause her more pain, she went into the hospital, at first for more tests, but after she developed a fever, her primary care physician decided to keep her there and begin another round of chemotherapy. That was when I took a leave of absence from teaching and moved into a Ronald McDonald House, less than a mile away from EMMC.

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Summer, 1988, when we were hopeful. It’s hard not to see the irony of her tee-shirt.

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Every morning and evening at the Ronald McDonald House, strangers on a journey none of us wanted to take would sit down together in the dining room to share stories. I’ve forgotten names, but I remember a woman—square and sixtyish—moving in slow motion in and out of the morning shadows cast by the light coming through the window over the sink, as she fried sausages for her husband, getting radiation for prostate cancer. I recall a five-year-old girl who was being treated for a brain tumor, and her stuffed penguin, Opus, sitting on the chair beside her at meals. And a man whose nineteen-year-old daughter’s transplanted kidney, the one he’d given her twelve years earlier, was failing and no one knew what to do next. “I can’t help her this time,” he’d often say to me. “What the hell do I do?”

At no time in my life have I ever felt more like a stranger wandering through an alien land. I had no control over the day’s events, no say in the final outcome. Every day, I would enter Laurie’s room and see that the morphine level on the gizmo intravenously feeding pain medicine was higher than the day before. Contractions in her throat and pain in her esophagus made eating more difficult, until Dr. Brooks made decision to stop the second chemotherapy and to feed her through another IV.  She experienced pain in her leg, ankle, and foot. “I only want it to be over!” she told me. Yet, with each new setback, she’d ask, “What’s next?” What’s next was pneumonia, and test results that revealed her pelvis to be riddled with cancer. Soon she could only sleep for half to three quarters of an hour before contorting with pain. When Doctor Brooks prescribed an epidermal catheter put in so that the morphine could be administered directly to the nerve endings, the doctor who put in the catheter told me Laurie was now receiving as much morphine as anyone had ever received at EMMC.

I recall the morning she opened one eye at me while I sat by her bedside, holding her hand. She was on her back, but her head remained turned to the left, so her left eye was swollen. She reached up and touched my beard. “You need a shave,” she said. Those were the last words she ever said to me. Soon, her breathing became a combination of moaning and gargling. A nurse brought in some kind of suction device to clean out Laurie’s throat. The next night, when I walked into her room, all I could think of was the sound of my mother’s old coffee pot percolating from Laurie’s bed. That morning at 12:15 a.m. my daughter died.

I wish I could say that being with Laurie when she died was some kind of mystical experience, but all I remember was holding her hand and trying to keep her mouth cleared of mucus while tears and snot ran down my face. There was no feeling of the transcendent, no sense of having arrived anywhere. During those weeks, I read books on spirituality and theology. I spent time in the hospital chapel between visits. Yet I have to say that I never felt anything like the presence of God during that time, never felt comforted, experienced nothing except numb emptiness.

Yet, if there’s one thing I’ve learned from writing these blogs it’s that pilgrimage is an interior journey that continues long after the external one is over. As I found out in the months and years after I came back from the Ronald McDonald House, what I now call the God of my Not Understanding had been there. There had been a purpose to each of those days that I’ve never had since. I knew in the morning where I was going and why I was going there. No matter what else was going on, the great mysteries of life and death were always present. I learned more about courage, grace, and strength in the face of suffering from my daughter than from any coach, athlete, or soldier I’ve ever known. The reading I did, my experience with the silence of the hospital chapel, my giving up of control and entering into the unknown, all became the foundation for my life after Laurie’s death.

There were many times during November and December of 1988 when I wished Laurie’s doctor would just give her a shot that would end her suffering, but today, I treasure those last weeks I had with my daughter, They have become a sacred time, and my chair by Laurie’s bedside a sacred place, turning the experience into a pilgrimage— the most arduous of my life, and one I’m still, at some level, making.

Laurie
1987 Self-Portrait

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