For reasons I didn’t understand at the time, I recently decided to make a pilgrimage to the Eastern Maine Medical Center in Bangor, Maine where my daughter Laurie died almost thirty years ago of cancer. My specific destination was the hospital chapel where I’d spent so much time during the last six weeks of her life, and where I encountered perhaps the closest thing I’ve ever had to a “spiritual” experience.
The chapel hadn’t changed at all that I could see: same walnut paneled walls and altar, same cushioned chairs; the familiar hum of air conditioning punctuated by occasional voices in the hall, and, what I most remember, the large round window framed by red, yellow, brown, and blue panels, through which I could see the Penobscot River flowing downstream over the rocks—a living stained-glass window.
I sat as I used to on the left side of the altar in front of the window and thought of that surrealistic time and of my struggles to understand my daughter’s illness and impending death. But while I could recall the details, I could no longer feel the waves of anger that sometimes surged around the numbness in my heart. It was as if I were watching myself thirty years earlier, sorry for the poor bastard and all that he was going through, but at the same time more emotionally concerned with life now—working my 12-step program, dealing with the diminishments of aging and my apprehensions about dying.
Then I thought of my daughter’s dying in a room two floors above me, and about how I used to look out her hospital window at the same river, but how different the view here in the chapel was because of the shape of the window and its stained-glass frame. Which led me to consider the various ways I’ve framed events in my life, and on how often the way I’ve framed a particular incident has determined how I’ve responded to it.
I remember hearing from one of my college English Literature professors that 18th Century travelers, uncomfortable—even afraid—of the uninhabited natural world, would carry empty picture frames with them in order to frame their views of the Alps. I can’t find anything on line about those traveling frames, but I have found that many travelers during this period put a convex tinted filter on a frame called a “Claude Glass.” Apparently, they would sit with their backs to a scene, holding the folding glass so they could see behind them. The convex shape of the frame brushed background objects into the far distance and the tinted glass softened the reflected tones in order to make settings look like the paintings of the popular 17th century French artist, Claude Lorraine.
These frames helped control and tame what travelers were seeing. They also gave a distorted picture of reality. I don’t know about you, but the way I’ve framed events in my life has often done the same thing. My 12-step sponsor talks about our “frame of reference,” the values and attitudes which we use to filter perceptions to create meaning. Our frame becomes our assumptions, our “shoulds.” And it is these frames, not the events themselves, that we react to emotionally. As the Greek philosopher Epictetus wrote some two thousand years ago: “Men [sic] are disturbed not by things but by the view they take of them.”
I’ve become aware lately that my frame of reference is often one created from growing up in an alcoholic family, so that for most of my life I’ve framed events by judgments, resentments, and fear of confrontation. Thirty years ago, when I sat in the chapel at EMMC, I judged myself responsible for my daughter’s death because I had left her mother and married another woman. Rather than confront my ex-wife when she said that she wasn’t going to honor Laurie’s request for her ashes to be scattered, I refused to come to our daughter’s burial service.
With the help of my sponsor I’ve been working to “re-frame” my view of the world—looking at situations from different angles, shifting my frame of reference.
And I wonder if I went back to the chapel a couple of weeks ago because at some level I knew I needed to learn something from the time my frame of reference dramatically changed.
Thirty years ago, when I went to the hospital chapel I saw the events around me through the frame of “Why is my daughter dying?” None of the answers—cutting down rain forests is increasing cancer rates, her cancer is a statistical accident like getting struck by lightning, God is a sadistic bastard getting kicks from torturing innocent girls, and, of course, her death is my fault—did anything to relieve her pain, and only increased my suffering.
And still, “Why?” was the question that pounded in my blood as I sat in the chair on the left side of the altar and stared for the first time through the stained-glass frame at the river roiling in a December wind.
But as I sat, I became enfolded into the window, and from somewhere I heard the words, “Don’t ask why, just ask for help.”
At first, I didn’t realize what I’d heard. When I did, I angrily framed it, OK, help me understand the reason for my daughter’s pain and why she’s going to die before she’s ever really lived.
But I couldn’t take my eyes from the window. I felt my body loosen. The stained glass seemed to keep drawing first my angry words and then all of me into its embrace.
I didn’t understand then—in fact, I may not have fully understood until now—how the words “Don’t ask why, just ask for help” encouraged me to reframe Laurie’s death, shift the question from “Why is my daughter dying?” to “How do I cope with the death of a child? How do I find the help I need? How do I gain the courage to ask for that help?”
But it was through seeking the help of counselors, spiritual directors, my wife, my family, and the grace of the God of My Not Understanding that my life has been one of not only deep sadness but great joy.
The older I get, the more my pilgrimages involve relearning the lessons I first learned years ago. It would be great if I’d fused “don’t ask why, just ask for help” into my frame of reference thirty years earlier, but unfortunately that didn’t happen. I still ask myself, “Why can’t people think the way I do, act as I act?” instead of asking, “How do I get the help I need to speak my truth with kindness and not worry about what others think or how they behave?” Or instead of asking, “Why am I going to die?” asking, “Who and what can help make what time I have left as productive and joyful as possible?”